Service users drive improvements to the data they access about their care
In response to service users requesting more insight into the effectiveness of mental health treatment, IMPACT held an online monthly service user reference group for forensic patients to identify what data they would like to have access to and be able to evaluate regularly.
Service users had voiced that they had not seen meaningful data about their hospital care and felt that more insight would give them hope for a brighter future if they were able to see the success of recovery.
IMPACT commissioned multiple surveys, designed by the SURG group, to service users to help identify what insight would be valuable. As well as the data itself, they also decided on the frequency at which IMPACT would measure and capture the data and the format in which they would prefer it presented. Different ways of presenting the data were identified and put to a vote with all the service users so they could actively have a say in how the data would be most meaningful to each of them. The aim of the real time data will allow service users to build and develop transparency, trust and hope about the care they receive and its impact on them as service users.
The project has received an overwhelming response from patients. Their voice, input and poll ratings are vital to provide clear evidence on the effectiveness of mental health services.
Below is an example of a date theme preference from patients and the data then provided by IMPACT in response to this to reassure them that re-admission is very low:
The project has also been well received by the clinical teams at East Midlands Alliance provider organisations. The findings support the benefit that patient-led performance data has on each of them, as it creates an air of optimism and hope.
For more information about this Quality Improvement initiative please contact Jade Farrell, IMPACT Communications & Co-production Manager: jade.farrell@nottshc.nhs.uk